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Precision Documentation

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Last Modified Date7/1/2018 1:15 PM
SummaryDocumentation for the registry PRECISION
Content

The article gives information about the PRECISION registry project and the way to collect data via healthdata.be through the following points :

Information session on 26/06/2018 3 to 4:30 pm

The recording of the information session is below


The presentation of the Precision project, click here
The presentation of HD4DP Onboarding during the information session, click here

Description 

                            
More information on this study : here
 

Data Providers

  The following centers will provide data to this study:
  • Institut Jules Bordet
  • UZ Brussel
  • UCL St-Luc
  • CHU Liege
  • UZ Ghent
  • UZ Leuven
  • AZ Klina
  • AZ Nikolaas
  • UZ Antwerpen
  • Ziekenhuisnetwerk Antwerpen
  • GZA-Ziekenhuizen

Responsible

  Gordana Raicevic (Cancer Center - Sciensano): Send Mail

 

Data Collection Definitions
 

  • PRECISION_Central_MAB : here.
  • PRECISION_Local_MAB : here
  • PRECISION_treatment : here

Request an account

HD4DP is a local application that is accessible in a web browser, such as Internet Explorer or Chrome, which has a specific link in every organisation.
  • Open the link for the HD4DP application or contact healthdata.be at support.healthdata@sciensano.be to get the link for your organisation.

User-added image

  • Click on the Request account link on the login page 
  • Fill out the request form:
    • Enter a username, first name, last name and email address
    • Select the organization and data collection(s)
    • Fill in the Requester email field if a person requests an account for a third person
    • Submit the request user the Request button 
  • Confirmation emails are sent to the person for whom the account was requested as well as the requester, if the field 'Requester email' was filled
  • The approval or rejection for the user account is confirmed by mail. Depending on your orginazation, this could take a few hours.
    • This action will be done by an HD4DP administrator in your organisation 
    • The confirmation mail will include all the necessary information to log in
 

Start collecting data

The HD4DP application enables data providers to collect data

The medical and professional secret is protected at various levels and through principles such as encoding, encryption, and user-acces management. The combination of these elements guarantees so-called "end-to-end security". 

During the data collection process, which is done by this application, all data is securely (= anonymized) transferred to Sciensano, with the use of e-health box:

  • The data provider never receives the coded identifiers

  • eHealth has never access to medical data or metadata

  • Healthdata.be never receives the original identifier, but can reconcile different entries


An overview is given in the video:


We provide more documentation of the different functions and possibilities in the different phases of data collection in the HD4DP application.

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